Monday, March 5, 2007

Can You Help?


Save Giovanni Bone Marrow Drive
at the
Annunciation Greek Orthodox Church, Dover, NH
Saturday, March 10, 1pm to 5pm
Giovanni wants you: 18 to 55 in good health.
Simple cotton swab procedure conducted by dkmsamericas.
Save a life, you won’t regret it for the rest of yours.

Giovanni Guglielmo is a 7 month old baby born with an undetermined immune deficiency that is threatening his life. Giovanni's family and friends are working furiously to rally support for beloved Giovanni in an effort to save his life. The Guliamo family has gotten great media coverage and would like to thank all those that have found it in their heart to reach out to Giovanni and help with monetary donations, prayers and inquiries regarding bone marrow drives.

Giovanni has taken a drastic turn for the worse and is very ill. He's losing weight and his intestines are bleeding. He's on a constant feed, and is throwing up most of the food when lifted up. He is getting weaker, and the smiles are becoming fewer and further between. We were given a preliminary diagnosis yesterday of NEMO, as well as a second gene mutation that is not identified to any existing disease. NEMO is a very rare x-linked chromosomal disorder. Giovanni's is described as a severe NEMO requiring a bone marrow transplant. Giovanni is of Italian and Greek heritage and his parents live in Belmont, NH. Please seriously consider being a bone marrow donor as you may save a life.

WE NEED 100 PEOPLE SIGNED UP IN ORDER FOR THE BONE MARROW VAN TO COME TO DOVER, NH.
If you are able to come Saturday, please give me your name and phone number so I can put your name on the sign up list.

Additional information is available at the web site: http://www.savegiovanni.org/ or http://www.helpgiovanniguglielmo.org/
If you are unable to make Saturday but want to help, you can go on-line and register. They will send a swab kit to you.
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Dear friends,

My church is sponsoring a bone marrow drive this Saturday March 10th from 1pm to 5 pm in Dover, NH in hopes of finding a donor match to save this child's life. In order to for the bone marrow organization to commit to flying in with testing kits, we need a minimum of 100 people to commit to being tested. This is a simple process of filling out some paperwork and having your mouth swabbed with some cotton. This boy and his family are originally from Belmont, NH and are now residing at Children's Hospital in Boston, he is that sick at this point. The doctors say that without a marrow transplant soon, he will likely pass away. I have attached the website that the family has created and although he is of Italian/Greek descent a match could be out there anywhere, regardless of your ancestry. I am hoping that you and your spouses may want to commit to getting tested for this cause. If you are, will you please contact me as soon as possible as we have to have a list together by Wednesday to give to dkmsamericas, the company that coordinates the testing. There is no cost to you and if you are a match you are permitted to not commit to donating, and it's completely anonymous at that point.

If you feel that you are able to get the word out, posting info at a work place, please let me know as I have flyers.

Thank you for your consideration in this matter.

Stephanie

If you can drop by Stephanie's church (the church is located on 93 Locust Street in Dover, NH, near the library) this Saturday, you’ll find it only requires a few minutes of your life and a simple swab of the inside of your mouth – that’s all. Please let Stephanie know ASAP if you can make it – she needs to know by Wednesday of this week. Feel free to contact Stephanie or Crystal if you'd like to help out in any way. Thanks so much! ~Crystal

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